Patient Advocacy Group Patient Advocacy Group
Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience. In highlighting the grave disparities this community faces, we hope to influence decision-makers and propel change.
Sick Cells envisions that this narrative work will achieve the following:
Ignite public interest making sickle cell a public health concern
Humanize SCD, which is a relatively invisible disease that affects people of many races and ethnicities
Inspire the general public, who do not typically recognize their day-to-day encounters with SCD, to advocate for SCD
Influence policy makers, educators, employers, healthcare administrators and healthcare providers to act to improve treatment and care for the SCD population
Drive research and drug development which will lead to better treatments
Empower the sickle cell community, regardless of hemoglobin type, to share their stories and know that they are not alone
Through these actions, we hope to improve the quality of life and care for people living with the most common genetic disorder by challenging current policy and shifting social norms.