NephCure Kidney International Foundation
NephCure Kidney International Foundation
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Patient Advocacy Group
About
NephCure Kidney International’s mission is to accelerate research for effective treatments for rare forms of Nephrotic Syndrome, and to provide education and support that will improve the lives of those affected by these protein-spilling kidney diseases. As the primary advocate and catalyst among key stakeholders in the Nephrotic Syndrome community, NephCure strives: To support and facilitate basic science and translational research. To support and facilitate clinical research by actively supporting patient recruitment to address the ever-growing demand of clinical trials. To advocate with government bodies to provide federal funding for Nephrotic Syndrome research and facilitate new treatment approvals. To provide support, connections and education for patients and their families. To reduce the time between patient symptom presentation and the expert clinical care which is required by this rare disease.
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Life Sciences Pennsylvania was founded in 1989 by a biotech scientist at Penn State University. Today it has grown to represent the entire life sciences industry – medical device companies, pharmaceutical companies, investment organizations, research institutions, and myriad service industries that support the life sciences in Pennsylvania.